Showing posts with label Medical. Show all posts
Showing posts with label Medical. Show all posts

Thursday, January 16, 2014

Brooke's 6 year old check up


Brooke had a great 6 year old check up. She was thrilled because there were no shots! She is in the 38% for weight (at 43 lbs) and 34% for height (at 44.5 inches)... very proportional of her! She also checked out perfectly with both her hearing and vision. A clean bill of heath, which is so nice to hear (no holes in her heart, no umbilical hernia = a easy check up). 

Our doctor provided this list of 6 year old accomplishments. Brooke is able to do all the following except the last three.
- plays cooperatively
- brushes teeth without help
- enjoys friends
- dresses/undresses self without supervision
- shows independence
- ties shoes
- knows right from left
- prints name
- gets physical activity
- plays computer games
- reads
- rides bike without training wheels
- understand long commands or complex sentences
- can tell a story about recent events
- readiness to learn to read and do math
- conforms to simple rules regarding behavior
- able to walk heel to toe
- able to draw a triangle
- watches TV
- knows number to call in case of an emergency
- understand fair/unfair
- knows telephone number and address (lacking the address part)
- tells time (only on a digital clock)

Wednesday, October 23, 2013

8th tooth


Jack really is a Jack O Lantern for Halloween this year... or maybe a great Dracula. He now has all top four teeth missing. A couple good yanks (and "cracks" as he says) and out his 8th tooth came (top right, next to the middle).  It takes him forever to grow the new teeth in, so he may well be asking Santa for his top FOUR teeth this year.

Thursday, September 5, 2013

Another Tooth Gone & Mining

At our block party, there was a 4 year old boy who filled up a gatoraid bottle with water and threw it... right at Jack's mouth. They were in the kiddie pool and Jack started crying - I thought out of shock. I scooped him up to try to sooth him and realized his mouth was bleeding. At a closer look, I realized his top tooth, to the left of his middle one (already gone) was OUT! The impact of the bottle knocked out his tooth. Fortunately it was a baby tooth, but it was only slightly loose and probably could have stayed in his mouth until at least the end of the year. One of our neighbors fished out the tooth from the kiddie pool so we had the tooth to give to the tooth fairy that night. But now Jack is missing three, top front teeth and has a very big hole when he smiles.

We went to Zoo Mars (a petting zoo) for a friend's birthday in August and Jack really wanted to do the mining activity, but it wasn't part of the party, so I promised I'd take him another time. I took a day off from work and the kids and I went to Zoo Mars to go mining. I was so glad to be able to do that with them - fulfill a promise - and just watch them enjoy themselves with doing something new. They had fun sifting through the sand to find their gems; and then look up the gems on the brochure to see what they got. Little did they realize that THEY were the best gems of all.

Saturday, August 24, 2013

Brooke & Shingles

Wednesday night, I noticed a small red area on Brooke's back. Thursday night, it had grown and there was a second red spot under her arm pit. So on Friday, Scott took her to the doctor and found out she has shingles. 

A small lesson on shingles:
-kids can get it (it isn't just for adults)
-it is a disease caused by the chicken pox virus (not caught by other people with chicken pox or shingles)
-you had to have chicken pox or the vaccination to get shingles
-it typically isn't as painful or as itchy for kids as it is for adults
-most common on the back, check or stomach

Brooke had chicken pox at the baby house before she got home. And once you have it, the virus stays in the body dormant. But for some reason, can be reactivated as shingles. Her rash should last for 7 to 10 days. She is itchy but isn't scratching. No prescribed meds were given, but we are putting on hydro cortisone cream and giving her Benadryl to help with the itching. We are also covering the rash with gauze and medical tape so if she does touch it, she won't rip at the rash. I'll spare you the photos of the rash.

We've notified families that we spend a lot of time with and fortunately, this is happening before school starts - otherwise she'd be home for a week! She is being a trooper and still, for the most part, is in high spirits.

Wednesday, June 5, 2013

Sleep walking

Last night as we turned off the TV to go to sleep, it was all quiet and dark. We hear this shuffling of feet – moving fairly fast but not running. Scott catches a glimpse of Jack heading down the stairs. Scott calls out to him – but nothing. We jump out of bed and race down the stairs. As we both reach the bottom of the stairs, Jack walks back toward the stairs from the family room and comes directly into my arms. I scoop him up and head back up the stairs. I’m holding him so I can't see his face and it was too dark for Scott to see Jack’s eyes. I took him back to his bed and put him in. His eyes were totally closed and he made no signs of being awake.


Maybe a year ago (maybe long), Jack slept walked down the hallway, into our room and laid on top of me. But last night was the first 1st time we’ve seen him sleep walk down the stairs! This is the 2nd time - that I know of - where Jack has slept walked. I've done a little Internet reading on it and although it doesn't seem there are any medical issues, it does raise some concerns about safety that we'll have to address. My limited reading did put a link between sleep talking and sleep walking. And we do hear Jack sleep talk a lot - maybe once a week. About half those times, he is saying, "NO BROOKE!"

Tuesday, April 30, 2013

Jack's ears... and teeth

This is why I keep this blog going... to help me remember things in my kid's life, but I'm looking for when something happened and I clearly didn't write about it so I have no idea when it actually happened!

Jack had his second set of tube put into his ears in August 2011. Tubes are suppose to stay in for something like 9 - 18 months. (His first set in 2009 barely lasted 6 to 9 months.)  I think the first tube came out in the beginning of this year (this is why I should have posted about it so I could "remember"!). I totally recall getting the tube out because Jack had been complaining it hurt and when I looked into his ear, I could see it starting to come out so I pulled it out with tweezers. Since then, I could see the other tube but not enough to pull it out.

But last Saturday night, Jack had been swimming in our pool and running around with his friends. All of a sudden, he felt something in his ear, and his tube had finally made it's way out and was sitting in his ear. Almost 21 months that tube lasted. Ironically, Jack had his follow up appointment with the ENT two days later.  The ENT said Jack's ears look great, and that at the last appointment in October 2012, we said one tube was already out (so much for my memory of when that actually happened!). There is a little congestion behind the ear drum in the right ear -- same ear the tube just came out of and he has a cold, so she wasn't worried. She said no more ear plugs! Which actually makes both Jack and I nervous since the poor boy has been wearing them for half his life every time he is in water. 

As for Jack's teeth... purely for the purpose of documentation... as I was scrolling back in my posts to look for when the ear tube came out last time, I realized I didn't post about Jack's 4th tooth that came out in March. It was shortly after we had moved into our new house. The tooth had been a little wiggly. Jack had it set that he wanted to pull it out -- so that he'd have something to write about in his school journal the next day! He wiggled and wiggled it -- right before dinner. I was worried it would come out during dinner. He even though if he bit into the apple, that the tooth would get stuck on the apple and come out that way.... it didn't, but Jack literally just yanked the tooth right now.

To recap: He lost his first tooth in January 2012, 2nd in July 2012, 3rd February 2013 and 4th March 2013. The first two teeth were the middle bottom two and the next two teeth were the 2 next to those. And now his top teeth are starting to wiggle - enough where I'm starting to see a gap between his front two teeth.

Wednesday, April 10, 2013

Health Updates

Brooke had her surgery to repair her umbilical hernia 2.5 weeks ago and all is great. The day of the surgery couldn't have gone better. The hospital and staff were super. Brooke's behavior / attitude was picture perfect. Now, after the surgery, we had some challenges... keeping a 5 year old calm with little to no physical activity was impossible. Keeping her from pulling off the waterproof bandage that was on her for the first week was difficult. Keeping the surgical strips over the belly button on until the follow up appointment with the doctor was impossible. (They came off about a week early.)

We had our follow up appointment with the doctor today and it was the fastest appointment we ever had. Literally in and out from check in to seeing the doctor to checking out within 10 minutes. Brooke's belly looks great; still a little swollen, but to be expected. It still looks like an outtie but that is because (and I quote the doctor), "she has no body fat! When she grows and fattens up, the belly button will go flat." She got the okay to resume physical activities (not that she was ever really slowed down past the first day of surgery), so back to swim and soccer we go!

Jack is now over the stomach flu. He threw up last Thursday and we thought it was something he ate. But by Friday afternoon he was having other bathroom issues that went through the night and into Saturday morning. We thought we were over it since he was fine Saturday afternoon and evening, but by Sunday afternoon, he was sick again. Poor guy - it is heart wrenching watching your baby throw up and ask you at 4am, "why is this happening to me?" I told him that he must have a bug and his body is trying to get rid of it. His response: "but I didn't eat any bugs!"

Saturday, March 23, 2013

Brooke's surgery

Brooke had surgery to repair her umbilical hernia. A little background story.... her medical records from Kazakhstan didn't show anything remotely related to an umbilical hernia -- or a heart condition for that matter. But as soon as she got home, we found out she had an umbilical hernia and hole in her heart. The doctors said the umbilical hernia may close on its own by the time she is 3 or 4 years old. At age 3 - it wasn't. At age 4 -- it still wasn't but the hole in her heart was closing so it was recommended to wait to see if the hole in the heart closes because they recommended against surgery with a hole in the heart. In spring 2012, the hole closed and so at her 5 year old check up, the doctor recommended to see a pediatric surgeon to explore doing surgery to repair her umbilical hernia.

We met with Dr. Gibbs in January and the good new is that the umbilical hernia is small, but clearly not repaired on its own. Since it protruded so much (like an outtie belly button), he recommended surgery. So it was scheduled for Friday, March 22; arrive at hospital at 6:30am for a 8:30am surgery. The procedure takes a hour - until 9:30am with an expected release of 10:30am. Just that simple!

For the 2 months up to the surgery, we talked a little about it. Jack tried to prep her for what was to come -- warning her of "the mask" (as that was his most scary part). Nini gave her a couple books on "going to the hospital" to explain what an operation was and what to expect. I honestly don't think Brooke grasped the idea of what was to come until about two weeks before the surgery. She'd ask if the doctor would use a knife or scissors to cut her belly button and she'd ask what stitches are.

On the day of the surgery she woke up no problem and the whole ride in the car was not a problem. But as soon as we pulled up, she was clingy. We checked in, went to the surgery floor and went through admission all with Brooke stuck to me. When we went back to the pre-op area, she softened a little, and started to talk to the nurses, play with toys and read books. 

I spoke with the nurse about giving her some anti-anxiety medicine but decided not to. Instead, a child life advocate came to bond with her. The child life advocate was amazing. Talked with Brooke, explained what would happen, showed her pictures and even the mask they'd put on to get her to go to sleep. She was even to pick up what flavor smell she wanted in the mask - both for her and her stuffed animal. I found out that they would put her to sleep before any needles or IV - great! 


The Dr. came to talk to Brooke, the anaesthesiologist came as well. All explaining to her what was to happen and she took it all in stride. When it was time to go to the OR, the child life advocate came back with an iPad and played a princess video. I could barely kiss and hug her goodbye she was so into the video. I'm glad I didn't consent to giving her the anti-anxiety medicine because the video worked even better! 

I went to the waiting room and watched the monitor board as they moved her from pre-op to surgery to recovery. About 10 minutes later, the child life advocate (who was able to accompany Brooke into the OR), said she did great.... put the mask on and went right to sleep while watching the video. Scott - who had been taking care of Jack and dropping him off at school - arrived while Brooke was in surgery but arrived before the Dr. came out to talk to us. He said the surgery was great... small hole, tied up nicely, no problems or complications.

A few minutes later, we were escorted back to the recovery room. As we were walking up to her, she was just waking up and trying to sit up. She was groggy, but not bad, no crying, just laying there. She didn't like the IV in her hand and the nurse said she had to drink some juice before they would take it out. Well.... our little drinker downed two apple juice boxes and out the IV came. We changed her and was discharged just like that. 

We got home, gave her some Motrin (to get ahead of any pain) and tucked her into our bed to watched a movie. Then we had lunch and sat on the couch to watch another movie. Then the hard part came..... she wanted to run around! It was all I could do to keep her mostly still. But by 7pm, the day caught up with her. She was tired and in some discomfort so we gave her some more Motrin and put her early to bed. 

She slept through the night with no problems. The next morning, she said her belly hurt but I held off giving her any medicine until after she had food in her stomach. She complained again her belly hurt and even said that she needed medicine.... hummm.... then Jack said we had a surprise for her and she went bouncing up the stairs to get it. At that point, I knew she was just fine!      

Monday, February 4, 2013

Jack's 3rd tooth

Just over a year ago, Jack lost his first tooth - at my parents house. Over the summer, he lost his 2nd tooth - at my parents house. But the trend of loosing his teeth at my parents house has ended.

Jack's bottom tooth, right of his middle center has been loose for a while. But he never really played with it or bothered with it. But for some reason, during the Super Bowl, he wiggled and wiggled and wiggled it. So much so that he wanted to tie a string to it and close a door to pull it out.

I was, honestly, nervous about that idea. So I got some (slipperly) floss, tied off the tooth, tied off the other end to a door and watched him slam the door shut. The slipperly floss came off the tooth - with the tooth still intact in his mouth. But Jack was deteremined - still pulling and wiggling it. So much so that he said he could hear it "crack". And sure enough, seconds later, he pulled that tooth right out! He was so excited and happy about it.

I have my childhood tooth fairy pillow that we were able to use for the first time (since we were home when this tooth came out). As we were putting the tooth in the pillow pocket, Jack asked if the tooth fairy was strong because a pillow is a big thing to lift for a little fairy, esp. with him laying on it. Then he though that maybe tooth fairies can fly through the pillow to get to the tooth. He also went through the possibilities of how much money the tooth fairy would bring.

The next morning, I went into his room to say good-bye before leaving for work. Most of the time, he is still asleep or just waking up laying down. But this morning, he was sitting straight up in bed with a big toothy grin holding up his cash. He said he woke up at 5:40am to see what he got, went to the bathroom and then went back to sleep. (I'm not sure how much I believe that he went back to sleep...)


Tuesday, January 22, 2013

Brooke's surgery

At Brooke's 5 year old check up, we discussed with the doctor if Brooke should have her umbilical hernia fixed. The doctor recommended it, so we scheduled an appointment with a surgeon to get another opinion. After meeting with him, we decided to move forward with the surgery. The hole for her umbilical hernia is small, but the "outie" of her belly button is large. The hole should have closed by now and since it isn't, there is little chance it will close on its own. And many, many years down the road, if she was to ever get pregnant, an umbilical hernia could cause complications.

We have booked Brooke's outpatient surgery for Friday March 22. This way if there are any complications (which is not anticipated) we have the weekend to be with her and Scott will be home the following week. We pushed out the surgery for another two months because she just started soccer and swim lessons and after the surgery, she can't do any physical activities for two weeks. And since this isn't urgent, we decided to wait until after soccer is over.

I've told Brooke that she will have surgery but she doesn't really understand. I told her we will go to the hospital, lay in a bed with wheels, have a mask put on her, she will go to sleep, the doctor will fix her belly button and then she will wake up and spend all day with Daddy and I. She liked that last part.

Jack is very nervous for her because he remembers a few of his surgeries and really hates the mask part (being put to sleep). He has suggested that we use his inhaler mask (that he never uses) to practice with Brooke.

Friday, December 28, 2012

Brooke's 5 year old check up

Brooke had her 5 year old check up this morning. Over all, it went extremely well. We asked Dr. Yson about some behavioral concerns we had about Brooke - dropping words in sentences, not conjugating words correctly, her need for constant attention and manipulating people into getting it, comprehension vs. memorization, not understanding the concept of "why", etc. Fortunately, it seems all of our concerns are within normal range for her age. There are a few things we'll watch for in the next year or two, but over all - she is doing great. She is in the 25% for weight at 37lbs and 50% for height at 42.25".

Developmentally she passes just about all the 5 year old check list:
plays cooperatively
can draw a circle and cross
hops on one foot
brushes teeth without help
walks on tip toes
enjoys make-believe/dress (and boy does she!)
enjoys friends
cuts and pastes
plays simple board games
identifies 4-5 colors correctly (and even in Spanish)
can tell a story/knows some nursery rhymes
recognizes most letters of the alphabet (actually, all of them)
copy a triangle
dresses/undresses self without supervision
shows independence 
can count 10 or more objects (last I heard, it was over 20)
prints some letters (actually, all letters)
recalls part of a story
writes first name

The tasks she hasn't mastered yet are:
understands fair/unfair (unsure if she really comprehends this)
draws a person with head, body, arms, legs and face (she does all but the body)
ties shoes (haven't taught her this yet)
knows right from left (most of the time she knows this but not all the time)

The other big news from the appointment is that she still has her umbilical hernia. Most people think she has a really big outtie belly button. But from the day we got her home, we knew she had an umbilical hernia. At the time, we were told it may close on its own by the time she was 3 or 4 years old. At 3 years old, we were told to wait another year. At 4 years old, we believed the hole in her heart was closing so we didn't want to do any surgery with a possible heart complication. Now, at 5 years old and with the hole in the heart closed.... we are now ready to do the surgery to fix the umbilical hernia. We'll start the consult next month and determine next steps then. 

Wednesday, December 12, 2012

Another fever scare

After Brooke's fever in September, she has had two more. The fever in September was shortly after she had the flu shot so I thought it was a side-effect. I was hoping that was it because she hadn't had a PFAPA fever all year. And PFAPA fevers get up to 105 and this September fever was only 2 days and in the 102 range.

But then on Halloween she had another fever... again only for 2 days and in the 102 range.

And now she had another one December 10th. She was fine at school all day but by dinner, she melted down and low and behold, 102.3 / 101.8. A shower got the fever down to 99.8 but within 30 minutes it was back up in the high 100 range. The next morning, it was still in the 100 range but by the afternoon it was gone. I can't figure out what the trigger is or a common denominator.

This photo was not taken during her fever, but it is just so cute that I had to post.

Thursday, November 29, 2012

Sick or not

Yesterday I got a text from Brooke's teacher that Brooke was sick. I called the teacher and was told Brooke was sick, lathergic, not playing. I asked if Brooke was playing her and was told no - that Brooke said her head hurt but no fever. I knew Scott was unavailable, so I left work to get her. After I got Brooke but was still on my way home, Scott called. He said that when he went to get her up in the morning, he found her toys all over the floor. When he asked her what had happend, she said that she went to the bathroom and then played. He could tell she was exhausted so the story fit. At the breakfast table, she sat there for 30 minutes, not eating. After being told her she had less than 5 minutes to eat before leaving, she shoved all her food in her mouth, but then threw it all up. He asked her if she was sick or just put too much food in her mouth. She said the latter, so off to school she went.

After the new found knowledge, when I got her home, she didn't get to take a nap. I wanted her to learn that night time is when you sleep and you don't get to sleep during the day because you stayed up at night. Plus, I figured if she slept a lot during the day to catch up, she wouldn't sleep at night. So she watched me work, she worked on her birthday favors and our christmas cards.

However, when we went to put her to bed last night, we found throw up IN her bed. She couldn't answer what had happened. But my guess is, she woke up in the middle of the night, threw up and then played instead of getting back in the throw up.

We had to again explain the "we're not mad because you threw up in bed, we're mad because you didn't tell us". I tried to explain to her that she needs to tell us when something happens at night so I can take care of her. If she is sick and throwing up, I need to take care of her.

So now I have the guilt of if she did/does have a stomach thing since she threw up in the middle of the night, at breakfast and didn't eat anything all day.... and here I thought she was just playing us and was just tired, not sick. 

Wednesday, November 7, 2012

My Infertility Truth

November is adoption month - so why am I writing about my infertility.... perhaps because in the last few months, there have been several occurrences, conversations, situations, that reminded me of my infertility. Perhaps because I have distance from it now, that I feel as if I have more clarity... and strength to say the truth of how it really felt and what it really brought me.

Infertility sucks. No two ways about it. I felt alone, isolated, helpless and desperate... ALL the time. Even when I was smiling, I still felt that pit in my stomach, that failure. Not just for a minute or day, but years... from 2001 through 2005. I had such a deep desire, such a deep drive to have a baby and here my body was failing me and my husband. As a women and wife, I just felt like that was my job - to bear children. And here I couldn't. I think that is partly why a lot of women just don't talk about infertility. Not even family members would talk to me about it. And given it was some of my darkest years, it really is too bad more people don't talk about it to understand you don't have to feel alone.

When we first went to the fertility clinic, we had a small folder -- paper thin, literally. I remember us eyeing other people's folder that were inches thick and feeling sorry for them. And occasionally we'd see a red folder, wondering what that meant. Little did we know what we were in store for.

I remember some of our first meetings with the infertility doctor, he kept saying I was young and healthy and it would be no problem to get pregnant. Rounds and rounds of test, internal checks, marital checks and doctor appointments found nothing. So over a course of almost a year, we did 3 artificial inseminations, endometriosis surgery, 3 more artificial inseminations with injectiable drugs and nothing. So much for the "no problem getting pregnant". We decided to take a break from the emotional roller coaster.

Which that in itself is a great metaphor -- only you aren't on the ride with a ton of people. I felt like I was in the front cart, totally by myself. And although my husband was on the roller coast with me, he was in the way back cart by himself as well. Both of us on the same roller coast ride, but almost always at different points on the ride. We did have a few close family members cheering us from the ground, supporting us, but we were still individually alone.

A year after 12 monthly disappointments, we took the leap of faith to do IVF. Most people don't realize what that means, the weeks to get your cycle on track, the days of repetitive shots (in multiple places on your body), the weekly blood tests, the internal doctor checks. All sense of privacy for your own body is out the door. (Not to mention the money.) The emotional stress of how many eggs did you get, how many fertilized, how many do you put in, how many do you freeze...

The emotional build up, the wait, the anticipation. All the previous months of getting my period were horrible. But this time given we were doing IVF, to be told it failed was as if all of those previous failers were combined and dropped on my head in a crashing blow.

Then the grieving... and being told by the infertility doctor that he isn't sure why it didn't work but that we should do testing on my eggs... during the second IVF. To do it all over again.... but we did and we did the testing only to find out my eggs are bad, so bad that we only had 1 embryo... a girl. Which clearly didn't take. How about that for crushing.... not getting pregnant AGAIN and knowing she would have been a baby girl.  

I was done, I was raw, I was spent. And yet I was still willing to do a donor egg so that I could be pregnant, so that my husband (at least) could have a biological connection. (Which looking back is ridicules, but it was our path to get to "our" family, so in the end, it was worth it.) Now a donor egg is a whole other process.... looking through photos of young women, trying to pick one that would be half of the genetic make up of my child.... would her hair color go well with my husbands eyes? Would her skin tone complement my husbands? Would her height and weight complement my husbands? Try envisioning your child made up with your husband and some random women's picture that is on your computer screen.

By the way.... that red folder at our infertility doctors office meant they were using a egg donor. Yup, we had become one of those red patient folders.

We eventually picked a young women, we paid her (through our fertility clinic), we flew her down here, we got her eggs and inseminated them with my husband... and then comes the day when I'm to get inseminated with those embryos. There I am, at the clinic, in the room, laying on the table, mom on my right side, husband on the left side, feet up in lovely, cold stir-ups, a handful of techs swimming around the room, and the doctor walks in with 3 embryos, in the - as someone so rudely commented to me once - turkey baster. In the middle of literally inserting the embryos, the doctor pauses and I knew there was something wrong. He LOST the embryos. They didn't make it where they were suppose to be -- they were gone. Just like that -- gone.

And the other embryos that we had were frozen so we couldn't use them that day -- we had to wait a few more days, over a weekend. Horrific days those there. Desperately trying to do anything to not think about what had just happened and the pressure of what was to come.... our last embryos dethawing, how many would make it, would it be enough, would they implant, would they take? So there we were in early November, putting up Christmas decorations, just to avoid facing those thoughts.

After the dethaw, insemination and two weeks of complete bed rest to increase any chance we had, we still got the call that it didn't work. Crushing... beyond crushing.

Our doctor was willing to do anything to help us. He has some frozen embryos from other parents who HAD their kids and were willing to donate their embryos that they weren't going to use. But we were so raw, so disappointed, so empty that we couldn't pull out the deep depression we were both in.

I was done, beyond done. I wanted my body to be mine again -- not a pin cushin, not feet in stir ups every week. I no longer cared about being pregnant or giving birth, I just wanted a baby.

But I know why I had to live through that pain -- to get to not only 1 but 2 amazing children through adoption. Their stories are amazing, beautiful stories. They are amazing, beautiful kids. They are literally the light of my life as my life had been dark for years prior to them. I understand why I had to go through the awful pain of infertility... because if I hadn't, if we hadn't decided to do all those rounds of treatments, all those months of deciding next steps, we wouldn't have OUR kids. They just weren't born yet.

But my infertility left a scar. I still don't go to baby showers. I still don't like being around pregnant people. I still leave conversations where people tell their birthing stories. I still call those women "breeders". I don't hate them for being able to do something I wasn't able to do (be pregnant and give birth to my kids). I don't turn away because of any hate or mal-intent. I do it to protect myself from remembering that pain I felt so many years ago.

So as horrific as my infertility was, I'd do it again just to buy time to get to our kids. But would I tell someone else to choose fertility treatments over adoption? I wouldn't only because I know that drive, that desire where no matter what anyone tells you, you're going to do what you feel is right at that moment. But I would, and do tell them this -- adoption was THE BEST thing that I did. All the fears of adoption that we had before we adopted are 110% gone. My kids are MY kids. I'm THEIR parent -- no question.

It doesn't matter that my son doesn't have my nose or that my daughter doesn't have my eyes. New parents always seem stuck on this... the baby get his/her nose from mom/dad or the baby gets his/her toes from this or that (grand)parents. Honestly, later in life, do you think about that? When your teenager is yelling at you, do you think.. geez, she has my mouth? Physical characterics don't define a person. Who they are inside, how they conduct themself is what defines them. How they are raise by their parent (not necessarily who birthed them) helps mold their personality and that is what being a parent is about.

Sunday, September 23, 2012

Fever scare

Last Friday as I was leaving work, I got a text saying preschool had called - Brooke has a fever at 105! Slight panic set in and I raced directly to preschool to pick her up. I was frantically trying to remember her last PFAPA fever.... she had a low fever after Christmas but that was probably an ear infection, but before that it was June/July 2011.

When I got to preschool I found her laying on the couch and hot when I held her. I got her home and her temp was in the high 102 range. I gave her Tylenol, took off her clothes, put a wet towel on her and just held her for 30 minutes.... the fever came down to 100 and an hour later was normal.

The next day, Saturday, her fever was in the 100 range but never went higher. And she was congested. And by Sunday, a cough started. Given we had our cousin Andrew the prior weekend, who was getting over a cold - and Brooke had her flu shot that same weekend, we have concluded that Brooke had a cold, not a PFAPA fever.

Strange to be grateful that your child only had a cold. But this means we are 15 months clear of PFAPA fevers... maybe, hopefully she has grown out of it and we are in the clear!

Saturday, May 12, 2012

CLOSED!

I remember gettings Brooke's medical referral and thinking it looked good - no major issues. When we saw her, other than what looked like to be an outtie belly button, she looked good too. She was verbal, mobile, eating, drinking -- good! And then when we were leaving Almaty with her, at the medical clinic check out, that Dr. said something that should have raised some red flags, but it was a whirl-wind and we were anxious to get her home.

Within minutes of being home, my cousin (who is a Physician's Assistance), checked her out and said she heard something in Brooke's heart. We were 30+ hours of travel, no sleep and just happy to be home with two kids that again, the red flags weren't totally going off.

But a few days later at her check up with our doctor, she said there was definitely something going on with Brooke's heart. That is when the panic set in. We got referred to the head of pediatric cardiologists - Dr. Chang. After echos and EKGs, we learned Brooke had VSD - a hole in part of her heart. The good news was she wasn't showing any symptoms and she was acting normal. So we monitored her with check ups with Dr. Chang every 6 months.

At Brooke's 3 year old check up, our pediatrician couldn't hear anything with her heart. Dr. Chang later explained the hole was closing and pulled her appointments out to every year.

And today, he called with disappointing news that he won't get to see her again because the hole in her heart is totally, completely, 100% CLOSED!!!!!

This little girl will never know the difference. She'll never know that no matter what she was doing, there was always a shadow in my mind of "what if something goes wrong with her heart". She'll never know before signing any school or activity paperwork, I had to disclose her medical condition. She'll never know the pity or shock looks I would get when I told people she had VSD.

And I'm SO grateful!

Monday, April 23, 2012

Perfect Family Weekend

The weekend started Friday with a visit to Brooke's cardiologist. When he listened to her heart, he said that he could almost hear nothing. What does that mean? Nothing or something? Still a hole in the heart or closed? We go back later this week for an echo. Then wait a week (or so) to hear from the doctor to see if it is closed. We are cautiously optimistic that the hole is closed because he said that we probably won't see him again. But if it isn't closed, I'm guessing by the next appointment (in a year), it will be.


After picking Jack up from school, we took the kids to their first swim lesson at a new facility. Jack can doggy paddle, although he know how to use "big arms" to do the free stroke, he usually just kicks. After Jack's lesson, the instructor said Jack did an exceptional job. Brooke has always had floaties but this summer, she'll be in the pool without floaties. I told her instructor to start with basics with her. After her lesson, her instructor said she pretended to be scared - but clearly wasn't. Ya, she is a ham and sucks people in! Fortunately, he saw through it and pushed her. I think Brooke doesn't like putting her head underwater, but through the weekend, she got much better at it.


Saturday we had my cousin's son, Andrew, with us. (We watch Andrew about every other Saturday.) Andrew and I took Brooke to gymnastics, then met Scott at Jack's baseball game. Andrew and Brooke enjoyed picking flowers, playing in the dirt and running around, while Jack played baseball - having a few amazing plays. Then home for lunch, naps and play time for Jack. Once Brooke and Andrew were up, we went to our pool for a few hours to cool off.



Sunday we spent the day with Scott's dad and his wife. Relaxing, lazy, long brunch, then the Newport Beach boat show. I can't explain it, but I love the boat show. Nice day in the harbor, walking from boat to boat. We've been going for years (pre-kids) and even when Jack was first home, we took him. We didn't go for a year or two, when Brooke came home due to nap schedules, and juggling two small ones on boats / near water.... no thanks! But the kids are now big enough to go and man did they have fun. Jack would have gone on each and every boat if we let him. Of course, the kids favorite boats were the ones that had bunk beds!



And to top it off, on Monday, the kids has a perfect dentist appointment. Brooke even had her first x-rays done!


All is all, it was one of those perfect weekend. Kid-focused, family-focused, enjoying the weather and being outside. Ideal!

Friday, February 10, 2012

Back to Square 1

Remember this post about Jack's endoscopy, where we weren't sure if we wanted to do it, but was told it was one of the last physical tests to do on Jack.... and then we were relieved to have found an ulcer - caused by acid reflux, which was hopefully "the" reason behind his lack of eating. Well......

We had a follow up visit with the surgeon yesterday. The tissue samples he took from Jack show no abnormalities. Good, right? That also means -- no ulcer. That weird looking thing that the doctor thought was a ulcer, didn't show up on the pathology reports as a ulcer. So there goes that reasoning.

And better yet, if we want, we could do another physical test on Jack to see if he really does have acid reflux. Because if he did have the ulcer, they could assume it was caused by acid reflux. Without an ulcer -- it is unknown if he has acid reflux.

So as the Dr. said, we're really back at square one as to why Jack doesn't want to eat. We discussed several options and theories of what to do. Two options are more physical procedures to do on Jack. But at this point, we're unwilling to try medical procedures just to see if he has acid reflux or just to see if his stomach muscles aren't working properly and therefore aren't totally emptying out his stomach (therefore making him feel full).

So we've decided to do the following:
- keep Jack on the acid reflux medicine for 5 more weeks (8 weeks total)

- reduce the acid reflux dosage down from 2x per day to 1x per day
- try to alter his diet slightly to avoid foods that can cause acid reflux, but not go over board with these food changes
- if his eating improves, we can guess he has acid reflux
- if his eating doesn't improve, we take him off the acid reflux medicine and potentially take him off his appetite enhancement medicine because he could just be a kid who doesn't eat much.

Friday, January 20, 2012

Endoscopy

At our last GI appointment, it was suggested to do an upper endoscopy. It is an exploratory surgery to put a camera down his throat, esophagus and stomach to look for signs of reflux, inflammation, celiac disease, infection and eosinophilic esophagitis.

We were really on the fence about putting Jack through another procedure -- esp. one that puts him under. But in the end we decided to do it. We were up early in the morning to get Brooke to day care (HUGE relief to have the best day care who was willing to take her at 5:30am). We got to the hospital at 6am, checked in and went to the short term unit stay. Jack played with some legos that they brought, watched some Disney channel and read a Star Wars book.

We explained Jack's panic reaction to any shots or needles. So they gave him a drug to make him a little loopy -- so to not "care" when they put the IV in. They also put some numbing cream on his hand. NONE of it worked... could have been because the nurse was fishing around with the needle in his hand trying to find the vein. Poor Jack was cry and screaming to take it out. Once it was finally in, we were wheeled to the procedure room. I was on the bed with him this whole time but when I started to get off, he got scared and started to whimper. And when they started to hook up the IV to the meds to put him under, he was really upset and crying. To the point where I started to get teary-eyed. But he was asleep within minutes and they ushered me out quickly as my tears started to flow. At that moment, Scott and I both agreed to never put Jack through an exploratory procedure again.

We went to the waiting room, Scott grabbed a bite to eat and probably 15 minutes later, the doctor came out with pictures. He did find a small to medium sized ulcer at the bottom of his esophagus / top of his stomach. The doctor believes it could have been causing Jack pain or discomfort and that is why he isn't willing to eat. He believes that the ulcer was caused by acid reflux. He prescribed one medicine 4 times a day for 2 weeks and another one 2 times a day for 2 months, to eliminate the ulcer and get the acid reflux under control. The doctor also took some tissue sample in the esophagus, by the ulcer and in the stomach to be examined. We'll find out those results in a week.

It is interesting acid reflux is coming again. It was something the doctors in the past thought could have been a problem, but the medicine they prescribed for it never seemed to help. So this time, it is a higher dosage and longer time frame.

We are feeling guilty that if this ulcer and acid reflux is the reason for his poor appetite all these years, that we could have done this a long time ago to resolve it. But we are also hopeful that this IS the reason as the fix should be pretty easy (i.e. no surgery) and that we have pin-pointed the problem. I'm also hopeful that this is IT and not just another problem we've found that but doesn't solve the lack of eating issue.

Tuesday, January 17, 2012

Another ENT

After finding out Jack had a severe sinus infection that our ENT never found, we decided to get a second ENT opinion. This 2nd ENT that we were referred to, was actually the ENT surgeon that did Jack's surgery in August 2007 to remove to tonsils, adenoids (the first time) and abscess (which is the root cause of the surgery).

After two reschedules due to this 2nd ENT being called into emergency surgeries, we met with him. By the end of the visit, he said that he remembers us.... really?! During the exam, he did say that Jack looks great - tubes are perfectly in place, no signs of infections, hearing improving. All good!